Monday, November 26, 2012

Always "Kick" Me Goodnight....

For you formed my inward parts;
you knitted me together in my mother's womb.
I praise you, for I am fearfully and wonderfully made.
Wonderful are your works;
my soul knows it very well.
My frame was not hidden from you,
when I was being made in secret,
intricately woven in the depths of the earth.
Your eyes saw my unformed substance;
in your book were written, every one of them,
the days that were formed for me,
when as yet there was none of them.
Psalm 139:13-16

Well, I apologize...I have been having a hard time updating this blog.  I know there are so many of you wondering what is happening with us & I just haven't been able to sit myself down and write for the past month or so.... goes.  I will try my best to be much better about keeping up with everyone.  We definitely need continued prayer and wisdom as we draw closer to Josiah's due date and whatever the Lord has in store for his life and our family.  

I just love the verse at the beginning of this post.  It reminds me that it is the Lord who knows Josiah's story.  He is sovereign over his life and ours.  I am 29 weeks right now.  Josiah's "official" due date is February 11.  He is an active active active little guy.  He reminds me SO much of my pregnancy with Addison.  He moves around so much more than I even remember Owen doing.  When I was pregnant with Owen, I remember comparing him to Addison as well , even thinking how much I was looking forward to having a "mellow" baby after her!  She was (and is!) a little stinker.   But, right now I am glad that Josiah is sharing some of these qualities with his big sister.  Addison has a big personality and I am thinking of Josiah in that way too.   I think he is a fighter and that's what he needs to be.  

Every year at our local craft show I get a family ornament made.  Last year, after we lost Owen I got one made but didn't realize that the lady who does them had a way of representing our loss.  So the pictures above show the one I had her make for ALL our kids for this year.  I love the way it turned's just perfect.  Josiah is our little snowball.....

Over the past few weeks I have been letting myself hope.  I still have up and down days.  Some days I have a hard time shaking the sadness.  And some days I let myself actually start thinking......what if?  What if he makes it to term?  What if the Lord's plan is to let us spend some time with him?  What if we could actually bring him home if even for a short time?  His kicks and wiggles won't let me forget that he is alive and well with us right now.  And I have been reading ALOT on Trisomy 18.   I have received a couple of books (THANK YOU to each of you for thinking of us!),  I have been reading blogs and I have emailed a couple of other moms of babies living with Trisomy 18 ( Jill.......I really am going to get myself together and call you one of these days!  ) and I have overall been looking for HOPE.  And I am finding it.  And today I am feeling it.  Tommorrow might be a different story, but right now as I sit here typing this up, Josiah is kicking like crazy and I let myself think.......what if?  

So that has been my prayer lately....I pray that God might continue to give us the gift of time with Josiah and specifically that he might survive delivery even if just for a little bit.  I have already had to deliver one baby who was stillborn and would be so thankful to not have to endure that again.  I am not unrealistic.  I know that the statistics are not in our favor.  I know what the report from Akron Children's showed in regards to Josiah's heart and kidneys and brain.   I also know that God is the one who is writing Josiah's story and so I just need to leave it in His hands.  Right now He has called us to love him while we have him and to trust in Him.  So we keep praying for his little life and that the Lord will give us peace, comfort and wisdom as we walk thru this trial.  

The time we have been given with Josiah has been an unexpected blessing.  I have been really loving our little night-time routine.  He usually gets very active in the 8 to 10pm range and even if he has been snoozing right before I finally get to bed he ALWAYS "kicks" me goodnight.  Sometimes it might just be once or twice....sometimes he's still dancing as I fall asleep.  But,  he has done it every night since he started getting big enough to make his presence known!  Sometimes I find myself worried that I hadn't felt him for a little bit, and I just talk to him telling him to just give me a little kick so I know he's OK.  And he does.  It's hard not to smile when you feel that.  In the midst of all the what-if's there he is reminding me what IS.  He's an amazing little guy and I feel like I am getting a taste of his personality every day.  I am so thankful that God is giving us this time together.  I am so thankful that Daddy and the kids have all gotten to feel his kicks.  I am trying to spend these last several weeks focusing on what we have to share with him right now.  

Thank you so much to each of you for the different ways you have thought of us and cared for us over the past few months.  Thank you for your prayers.  Thank you for your emails, comments on this blog, messages and cards.  Thank you for remembering Owen.  Thank you for praying for Josiah.  Thank you for praying for the kids and for us. 

We have another fetal echocardiogram appointment next week so please be in prayer for that appointment.  At the last appointment the cardiologist said that there was no change and that his heart, in spite of it's defects, was still functioning fairly well and not showing any signs of deterioration, so we're hoping for a similar report at this next appointment.    

I'll be sure to update this blog after our appointment and let you know how we are doing...



  1. Cat, I loved reading you post this evening. Two things especially bring a smile to my face! Your Josiah is a true warrior!! and you have hit the nail directly on the head by claiming he is your true fighter! These children are some of the strongest and most resilient that I have yet to know! I also have to smile because I am not sure you realize this, but our trisomy 18 kids are characteristically true night owls :) G also had her 11 pm night time routine which continued well after birth. I never minded it because I always knew that was our special time w/out interruption of silly siblings around :) I am happy to read you have let hope into your heart and that you continue to make amazing memories with your special Josiah <3 So blessed to be a part of his journey <3

    Jill and Giuliana